(The following links are intended for information only. This site and the developer
of the resource list does not endorse any of the groups identified in these lists.)
International

Canadian

  • For information about each, go to Amazon and put the name or author in the search books, pull down dropdown menu to books and scroll down for reviews, etc.
  • The Thirty-Six Hour Day: A Family Guide to Caring for Persons With Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life by Nancy Mace & Peter Rabins.
  • There's Still a Person in There: The Complete Guide to Treating and Coping with Alzheimer's by Michael Castleman
  • Learning to Speak Alzheimer's : A Groundbreaking Approach for Everyone Dealing with the Disease by Joanne Koenig Coste
  • Talking to Alzheimer's: Simple Ways to Connect When You Visit with a Family Member of Friend by Claudia J. Strauss
  • The Forgetting: Alzheimer's: Portrait of an Epidemic by David Shenk
  • The Last Childhood: A Family Story of Alzheimer's by Carrie Knowles.

    Books by the Affected

  • Speaking Our Minds: Personal Reflections from Individuals with Alzheimers by Lisa Snyder
  • Losing My Mind by Tom Debaggio
  • My Journey into Alzheimer's Disease by Robert Davis
  • Living in the Labyrinth by Diana McGowan
  • Show Me the Way to Go Home by Larry Rose
  • And, for a list of books recommended by Harvard University, check here

And for more tips on self care, go here.

  • For the genes associated with EOAD, check this page of the Health and Age site
  • For an excellent and thorough overview of EOAD, review this private site
  • Confused about the differences between early onset Alzheimer's and early stage Alzheimer's? Read this Mayo Clinic interview
  • For an ABC News interview with an author and victim of EOAD, go here
  • Look here for a companion website to a TV piece on an EOAD affected
  • Learn about the Vial of Life Project. It's not just for seniors!
  • From the Ageless Design Alzheimer's store, learn about Alzheimer's proofing your home. And look around the store for other useful items
  • From the CNN medical library, an article on the the financial challenges of EOAD

U.S.

Need to find information on social services in your state? Do a Google for social services by state.

Canada

  • For products, services, and more, take a look at The Canadian Caregiver Network site.
  • Questions about Canadian law? Check here for links to tons of resources.
  • And go here for links to info on specific topics.
  • For links to an amazing range of Canadian tax info, look here
  • Check out this Senior Law site for information on elder law attorneys as well as a variety of elder law issues
  • Need a legal document? Go here to find it
  • Need an attorney to deal with your power of attorney or some other legal issue? You can search for one here
  • For information on a range of legal issues, including elder care, and for software for creating legal documents, check here at the Nolo site
  • Have questions about guardianship? Find some answers at The National Guardianship Association
  • Although developed especially for Californians, this page of the Family Caregiver Alliance site offers links to a variety of generally useful discussions of legal matters
  • And developed for New Yorkers, this legal and financial planning guide may be enormously useful to all caregivers.
  • For information on financial planning as well as the law, visit the Alzheimer Lawyer Alliance
  • Need to locate the facility you want? Go here to search
  • For housing options as well as essays on other aspects of housing, check this page of the AARP site
  • From this page of the U.S. Medicare site you can locate a facility by geography, proximity, or name.
  • Click here to find a checklist of questions to ask yourself when selecting a facility
  • Look for NH and SNF sites that are state-specific such as this one on North Carolina and this site for Michigan
    (Not sure how to search? Go to the search engine Google and enter the following: Alzheimer's facilities+name of the state
  • For an enormous variety of U.S. and Canadian sites related to assisted living and its attendant issues, check this site. Remember that anyone may submit a page to this site, so be selective.
  • A similar list of helpful links can be found here
  • For valuable consumer tips on selecting a physician or a facility, look here
  • Need to find or evaluate a physician, nursing home, or hospital? Spend some time at Health Grades
  • Want to file a complaint about a physician? Using Google, enter the following into the search box: state medical board+your state. You should see Google produce a site where you can download a form and learn about the complaint process
  • Wonder if there are sanctions against your health care provider? Check the him or her out here
  • Having problems with bathing? Eating? Other behaviors? Read this
  • Trying to decide how to keep your LO from driving? Check this page of the Ageless Design site and this from the Hartford Insurance site
  • Go for tips on managing difficult behavior
  • Visit this page of the Mayo Clinic site for helpful suggestions
  • From the Healing Well site, a useful article on agitation by Rich O'Boyle
  • For links to information on sundowning and wandering, check this

Sites by the Affected